Speaker: Anne Hugon, a parent concerned with GSD (Glycogen Storage Disease) and professional in the field of Rare Diseases, e-PAG volunteer at Eurordis, advocating for patients’ rights and access to diagnostic and quality care for rare diseases. EU Project Manager for ERN ITHACA at AP-HP.
We will have a unique opportunity to explore rare diseases from a parent’s perspective. As Anne beautifully puts it:
"I am simply a mother, a citizen, and a professional who stands up for what is right."
bkus[pnkts]lv.This lecture is part of the Pizza & Science lecture series, where you can learn more about research and patient care in paediatrics.
Location
Tā kā Rīgas Stradiņa universitāte ir publiska iestāde, pasākuma laikā jūs varat tikt fotografēts un/ vai filmēts. Fotogrāfijas un video var tikt publicēts universitātes mājaslapā, sociālajos medijos u. tml. Vairāk par savām tiesībām un iespēju iebilst pret šādu datu apstrādi varat uzzināt RSU Privātuma politikā. Ja iebilstat pret personas datu apstrādi, lūdzam par to informēt, rakstot uz rsursu[pnkts]lv (rsu[at]rsu[dot]lv).
As Rīga Stradiņš University (RSU) is a public institution you could be photographed and/or filmed during the event. Your personal data might be used to further the interests of RSU, e.g. for marketing or communication activities (incl. social media coverage). Read more about your rights see the RSU Privacy Policy. Should you have any objections to your personal data being processed please inform us via e-mail at rsursu[pnkts]lv (rsu[at]rsu[dot]lv).
